In an inspiring move filled with optimism and determination, the organization previously known as the Multiple System Atrophy (MSA) Coalition has unveiled its new identity as Mission MSA. Based in McLean, Virginia, this pivotal change was announced on March 25, 2024, marking a significant milestone in the organization’s journey towards combating Multiple System Atrophy (MSA), a rare neurodegenerative disorder.

Multiple System Atrophy is a condition that remains largely in the shadows of public awareness, even as it dramatically impacts the lives of those diagnosed and their families. Characterized by symptoms that include autonomic dysfunction, motor control issues, and parkinsonian features, MSA is a relentless foe due to its progressive nature and the absence of a cure. Against this backdrop, the work of organizations like Mission MSA becomes not just crucial but lifesaving, providing hope and support to a community in desperate need.

With the rebranding to Mission MSA, the organization seeks to inject a renewed sense of purpose and clarity into its operations, ensuring its messaging is directly aligned with its overarching goal: to lead the charge against MSA. “It’s not just a name change; it’s a signal of renewed focus and unbreakable spirit,” stated Joe Lindahl, the Chief Executive Officer of Mission MSA. The organization’s resolve to not only search for a cure but also provide for the immediate needs of those living with MSA is encapsulated perfectly in its new name.

This new chapter for the organization was born out of an intensive review that considered feedback from key stakeholders, including patients living with MSA, their care partners, and medical professionals. This collaborative approach underlines the organization’s foundation in community and ensures that its future direction is both meaningful and impactful. Pam Bower, Chairperson of the Mission MSA Board of Directors, encapsulates this sentiment by highlighting the organization’s collective effort and the shared commitment of its community towards education, advocacy, support, and research related to MSA.

In tandem with the rebranding, Mission MSA is set to launch a new website in early April. This digital platform promises to be a cornerstone in the organization’s strategy to provide valuable resources, foster community ties, and advance research in the relentless fight against MSA. The website aims to be a comprehensive hub for those affected by MSA, filled with information, support mechanisms, and opportunities for involvement.

Through its rebranding to Mission MSA, the organization stands as a beacon of hope and resilience for the MSA community. Its focused mission to support, heal, and raise voices in the quest to rewrite the story of MSA demonstrates an undying commitment and a bold path forward. As Mission MSA embarks on this new phase, its dedication to making a lasting difference in the lives of those affected by Multiple System Atrophy is clearer than ever.